International Journal on Science and Technology
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Volume 17 Issue 2
April-June 2026
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Living with Little Hearts: Maternal Illness Perception and Family Dynamics in Childhood Congenital Heart Disease
| Author(s) | Ms. Rahmath Noor Jessima sheaksyead, Dr. Shankar Shanmugam Rajendran, Mr. Kannan kasinathan, Dr. Vanitha Narayanasamy, Ms. Indira Marimuthu, Ms. Prabavathi Srinivasan |
|---|---|
| Country | India |
| Abstract | Introduction: Congenital heart disease (CHD) is among the most common chronic pediatric conditions and places substantial emotional, social, and financial burdens on families, particularly mothers who are often the primary caregivers. Caring for a child with CHD can influence maternal perceptions of illness, disrupt family routines, and affect overall family functioning. Objectives: To explore the illness perceptions and family dynamics of mothers caring for children with congenital heart disease in a selected tertiary care hospital and to identify areas where healthcare professionals can provide improved support. Materials and Methods: The study employed a mixed-method exploratory sequential design. During the qualitative phase, six mothers were selected using purposive sampling and participated in in-depth interviews. In the quantitative phase, 60 mothers were recruited through convenience sampling. Data were collected using a socio-demographic and clinical profile sheet, a semi-structured interview schedule, and the McMaster Family Functioning Scale. Results: Qualitative analysis revealed four major themes: understanding of illness, effects on family and everyday life, coping approaches, and sources of support. Mothers commonly reported anxiety, uncertainty about their child’s future, and disturbances in daily activities and social interactions. Many relied on spiritual beliefs, family encouragement, and peer support to manage stress. Quantitative findings showed that the majority of participants were between 21 and 30 years of age (63.33%), homemakers (66.67%), and had completed secondary education (45%). The mean family functioning score was 26.45 ± 2.95, and 76.67% of mothers demonstrated good family functioning. Significant associations were identified between family functioning and variables such as maternal age, educational status, type of family, and the child’s level of physical activity. Conclusion: Despite experiencing considerable emotional and social challenges, mothers of children with CHD exhibited resilience and positive coping abilities. Enhancing family-centered care and psychosocial support services may improve maternal wellbeing and strengthen family adaptation. |
| Keywords | Congenital heart disease, illness perception, family functioning, mothers, coping strategies. |
| Field | Medical / Pharmacy |
| Published In | Volume 17, Issue 2, April-June 2026 |
| Published On | 2026-05-21 |
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IJSAT DOI prefix is
10.71097/IJSAT
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